SB0284

Consumer genetic testing providers.

Latest bill text (Comm Sub) [PDF]

Summary

Consumer genetic testing providers. Provides that a person may not discriminate against an individual on the basis of the individual's solicitation and use of consumer genetic testing services or on the basis of the results of genetic testing performed by a provider of consumer genetic testing services (provider). Requires a provider to disclose specified information to an individual who submits biological material to the provider for genetic testing. Prohibits a provider that performs, or causes to be performed, genetic testing on an individual's biological material from: (1) taking specified actions with regard to: (A) the biological material; or (B) data resulting from genetic testing performed on the biological material; unless the provider has solicited and received the individual's consent to the action; or (2) providing data, other than deidentified data, resulting from genetic testing performed on the individual's biological material to: (A) an insurer; (B) a business that provides information or data to insurers for the purposes of underwriting or rating of risks; or (C) the individual's employer. Imposes requirements on a provider with respect to: (1) controlling access to an individual's biological material and data; (2) complying with the individual's revocation of consent with regard to the individual's biological material and data; and (3) marketing or advertising sent to the individual as a result of the individual's solicitation and use of the provider's genetic testing services or use of a website or other remote or virtual service associated with the provider's genetic testing services. Provides that a provider may not charge a fee for the provision of biological material or data resulting from genetic testing performed on biological material: (1) to a law enforcement agency on the basis of a search warrant; or (2) as required by a court order; that is more than the provider's actual cost of providing the material or data. Provides for enforcement of the bill's provisions by the attorney general.

Authors

Authored by Senator Hunley

Roll Calls

2024-01-30SenateSenate - Third reading PASS

Fiscal Outlook

Title Description Date View
Fiscal NoteFiscal Note #2: Senate Engrossed2024-01-30 Click To View
Fiscal NoteFiscal Note #1: Senate Engrossed2024-01-29 Click To View
Fiscal NoteFiscal Note #1: Senate Comm Sub2024-01-26 Click To View
Committee ReportSenate Committee Report2024-01-25 Click To View
Vote SheetVote Sheet January 25, 20242024-01-25 Click To View
Fiscal NoteFiscal Note #1: Introduced2024-01-12 Click To View

History

Date Chamber Action
2024-02-06HouseFirst reading: referred to Committee on Commerce, Small Business and Economic Development
2024-01-31SenateReferred to the House
2024-01-30SenateSenators Niezgodski, Pol, Qaddoura, Randolph, Taylor G, Yoder, Ford J.D. added as coauthors
2024-01-30SenateSenator Becker added as coauthor
2024-01-30SenateCosponsors: Representatives Miller K, Baird, Pryor
2024-01-30SenateHouse sponsor: Representative Pierce K
2024-01-30SenateThird reading: passed; Roll Call 70: yeas 49, nays 0
2024-01-29SenateSenators Koch and Vinzant added as coauthors
2024-01-29SenateSenator Buchanan added as third author
2024-01-29SenateSecond reading: amended, ordered engrossed
2024-01-29SenateAmendment #1 (Hunley) prevailed; voice vote
2024-01-25SenateCommittee report: amend do pass, adopted
2024-01-16SenateSenator Johnson T added as second author
2024-01-16SenateFirst reading: referred to Committee on Commerce and Technology
2024-01-16SenateAuthored by Senator Hunley